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Post by Deleted on Sept 3, 2016 0:26:15 GMT
I have been on a certain medication for about two decades for a chronic, manageable condition. Said condition has worsened and my medication was doubled and then tripled. The first day of taking three pills, I was hit with an alarming sensation of a loud, high-pitched whine. I immediately went off all my regular medications (including some other fairly benign ones) and the sensation has not stopped, but waxed and waned to a certain extent. Yesterday I decided I could not continue without having my symptoms controlled, so I restarted the medication at a greatly reduced dose. The horrible sound is back with a vengeance.
I went to my doctor and he said it is a wait and see situation. Internet research has told me that it will disappear after a while, while other sites have told me I have it for life, even if I stop the medication. By the way, never try to get any information from medical "forums", that is, people with symptoms who counsel other people with similiar or disimilar symtoms. Depressing.
So I think I'll go cold turkey again tomorrow and see if this abates again. If it does then I will have to detox from the medication (days? months?) and then try something else to manage the symptoms. This is a real bummer.
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Post by bjd on Sept 3, 2016 5:34:49 GMT
A bummer indeed. My husband has had tinnitus for about 15 years now but has never taken any medication for it. He just lives with it. He claims he can always hear it ( a whistling sound) but manages to forget it much of the time. I don't think there is a cure and have not heard of taking pills for it. Once I read about some operation where some needles are inserted into the brain as a remedy but that sounds pretty drastic.
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Post by Deleted on Sept 3, 2016 13:49:40 GMT
I'm taking zinc and magnesium and B12 at the moment, but am not looking forward to finding another medication that works after all these years. And as a singer, I'm certainly not looking forward to working like this.
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Post by chexbres on Sept 3, 2016 17:39:49 GMT
Your medication doesn't contain any hidden or obvious quinine or quinone, does it? Many doctors aren't even aware that people can be sensitive to these drugs. I had a horrible bout with tinnitus when I was given a low dose of quinine for chronic muscle cramps, decades ago. It took about a year after I stopped taking the medication before my hearing returned to normal. It turned out that I'm highly allergic to both these drugs, and can't even drink tonic water.
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Post by Deleted on Sept 3, 2016 19:08:49 GMT
So I shouldn't be drinking my one daily gin and tonic, then? I've never tried them until recently, and I've been looking forward to them daily. Jeez! Thanks, chexbres! I will be drinking my gin with something else, now. I'm going cold turkey on the tonic as of today. I'll let you know how I get on!
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Post by whatagain on Sept 3, 2016 19:18:53 GMT
So, if I understand what tinnitus is, you seem to be related to Joan of Arc, but you must still practice to figure out the words...
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Post by Deleted on Sept 3, 2016 19:40:27 GMT
Haha. I think not the English, but the Church would certainly burn me at the stake. I've done my research and I'm switching to Tom Collins today.
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Post by Deleted on Sept 3, 2016 20:49:11 GMT
So, if I understand what tinnitus is, you seem to be related to Joan of Arc, but you must still practice to figure out the words... Acouphène en français
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Post by whatagain on Sept 3, 2016 20:59:51 GMT
Yes, Ker, I looked that up on wiki, but didn't know it under french nor english name. So I couldn't resist saying something stupid.
Must be a PITA though.
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Post by chexbres on Sept 4, 2016 6:59:59 GMT
lizzyfaire - if giving up tonic water doesn't help, you should go see a hearing specialist. Perhaps it's something to do with your inner ear that can be easily fixed. Hopefully, you don't have an earwig! This describes the descent into madness that can be brought upon by tinnitus, for those who have not been so afflicted: poestories.com/read/bells
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Post by Deleted on Sept 4, 2016 12:01:37 GMT
Ah yes, the tintinnabulation -- and Milou nowhere in sight!
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Post by Deleted on Sept 5, 2016 18:10:35 GMT
lizzyfaire - if giving up tonic water doesn't help, you should go see a hearing specialist. Perhaps it's something to do with your inner ear that can be easily fixed. Hopefully, you don't have an earwig! This describes the descent into madness that can be brought upon by tinnitus, for those who have not been so afflicted: poestories.com/read/bellsChexbres, thank you, thank you, thank you. It was the tonic water! I had no idea that it could have that effect. I was concentrating on the medications I was taking without thinking about my daily, very weak G+T habit that I took to about six weeks ago. Of course, quinine is a drug. I stopped the tonic three days ago, and I restarted my medication today. The noise has abated significantly and is decreasing hourly. I am so grateful. Anything you need from Vancouver/Seattle? Gift from me to you!
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Post by chexbres on Sept 6, 2016 19:13:51 GMT
lizzyfaire - well, that was a good guess, wasn't it! I'm so glad we were able to uncover the mystery. I've never met anyone else who is as sensitive to quinine as I am. You should always mention this when you go for a checkup, even though most doctors will pooh-pooh your claim because they've never heard of it. No reward necessary - I'm sending you a bill for my professional services
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Post by Deleted on Sept 7, 2016 22:05:01 GMT
Day five and I still have something quietly chirping away in the background, but it's so much better. Of course, gin and tonics are out of the question, but quinine is present in chinotto and Irn-Bru (not that I ever drink those anyway). The adverse reaction is called Cinchonism. One of the side effects can be vivid dreams (I wish). Well, just thought I'd include that information for others who may be suffering; I aim to be educational.
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Post by htmb on Sept 7, 2016 22:18:47 GMT
Can you have gin mixed with something else? Gin and lemonade or gin and LaCroix lemon water are the two current favorites here.
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Post by Deleted on Sept 7, 2016 22:24:12 GMT
I've tried a Tom Collins recently. Pretty damn fine. The thing is, I started the daily G+T about 2 months ago, and I fell in love with cocktails (I only make them with a half ounce; it's the ritual that I like). I prefer wine or the very occasional beer, but I started looking forward to five o'clock, especially when I was on the island and could curl up with my sweetie in the hammock. I figure I'm getting a good hit of vitamin C with all that lemon juice.
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Post by fumobici on Sept 8, 2016 1:45:43 GMT
Chinotto! Now there's a guilty pleasure I sometimes indulge in when I'm in Italy. And Irn-Bru! How the heck do you even know about these esoteric foreign soda pops?!? I thought I was the only one over here who cared about such stuff.
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Post by Deleted on Sept 8, 2016 1:59:00 GMT
fumo, you wouldn't believe what I know. I'm just a sponge for useless information. I know chinotto because I used to live on Commercial Drive in Vancouver, the erstwhile epicentre of Little Italy. And I read so many British newspapers, and I do research about fine Scottish cuisine in trying to live authentically in our little cabin, how could I not know Irn-Bru? Never had that fine tipple, though. Perhaps it's the colour?
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Post by bixaorellana on Mar 27, 2023 2:41:11 GMT
True, tinnitus has no cure. But it’s also true that hearing specialists have many strategies to help patients cope. For most people, a lot can be done to lessen the discomfort. source
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