Travelling the Parkinson's track. Jun 24, 2018 8:49:23 GMT
Post by questa on Jun 24, 2018 8:49:23 GMT
Post by questa on May 30, 2017 at 4:42pm
For another slant on the subject - I am the aging parent and can tell how it affects me when my boys (now 40+) are seemingly in denial of my condition.(Parkinson's Disease) I was diagnosed 11 years ago, and it is developing very slowly so to most people I appear as a healthy woman who looks younger than her years (75) I still climb ladders, use power tools, drive and live independently. What they don't see is on the bad days, the weariness,aches and pains and the
loss of capacity to remember things or concentrate on anything.
My sons have not read any of the pamphlets I gave them. Not interested yet. Have to wait for more brain cells to die.
Question: Would the Anyporters like me to post an occasional update of the journey I am on. I hope it will be humorous more than morbid, and it will balance the stories of Kerouac2 and Kimby
About a year ago I posted this in the "ageing parents" thread (#2224). Several of you here were interested and suggested a new thread be made, so here 'tis.
Time seems to rush past and what starts as a bit of inconvenience settles in to be a Parky stage. I'm still driving but try not to drive at night. I passed my licence test but feel less confident in the dark. Ditto using power tools...only if no-one else is around to help will I power up. I received a really good drill for Mother's Day but have not used it much.
I still scamper up 4-step ladders but find my arms can't carry the heavy hanging pots as easily and they overbalance me. Balance is one of the "Biggy" problems with Parky's, so many people lean forward and do a graceful nose dive, throw out their arms and wind up with busted wrists. I have found that as you start to fall, bend knees, stick bottom out and roll into a ball with arms around head...practiced it on my bed til I hope it will be automatic. Works for echidnas and hedgehogs...worth a try.
I'm not drooling ...yet, but takes ages to eat a meal, better when I can use a spoon aka "Mess Minimizer". One of the side effects of my meds has a tendency to wreck teeth...2 out last year and another to come out soon. Cooking is OK except carrying a very heavy wok with boiling liquids in it...lock the dog out and concentrate on wok. My hands and right knee are shaking most of the time now. When I have to do something fine motor, like threading a needle, the tremor stops for the duration. Knitting is a really hard thing now, but I am hanging in there.
I was interviewed for a doco about 50th year of car club event. It was when I saw the playback I realized my face has lost most of its expression and looks like a mask and my voice has become a soft monotone. These are classic signs and to some people the most depressing. When you meet a friend who can't smile at you and whispers huskily...you usually don't want to hang around and chat. I have become more stooped and have a tendency to shuffle when at home or tired. However, at the big National mini club party I was hoppin' and a-boppin' with the 30+ mob. Every one went outside to see some fireworks, DJ put on "Mustang Sally" (a fave) and I just danced in the big room by myself, remembering the 50 years of parties there. I still got the moves, Babe!
Aches and pains persist but mentally I am much sharper since I chucked one of the stronger meds and switched to Ginkgo Bilobar. In many ways I am thinking better altogether. I am about to cancel my trip to Zanzibar, I have better ideas and my Doctor is not in favour of me on my own there. She advised against my Tibet trip and I went anyway...big mistake, so now I take notice.
So that is a year...is anyone interested in another post next year? I am open to questions or PM messages