Questa I am so glad you tried the Botox. And yes, I am very familiar with it. In my younger days - around 40-50, I had Botox injected into my forehead to stop that puckered up frown look. Then the beauty therapist - a plastic surgeon - decided they were experimenting with Botox in other areas of the face. Up to now it was never used below the eyebrows. So I went along with his new treatment for wrinkles around the mouth. Needless to say it worked so well that I could not pucker up my lips, which resulted in me talking with lots of air flapping my lips in a fashion babies do when you coochie-coo them with your finger on their mouths. It was not the cost so much that eventually made me stop the treatment but the frikking pain of that needle!
You talk about your hallucinations and can smile about them....I don't have them in waking hours but my vivid dreams where I talk, shout, cry, laugh, scream, swear and move my arms and legs physically is a worry to me. I have fallen out of bed several times but luckily my new hip withstood the crash to the floor. I have asked my husband to please wake me up immediately I start being audible as my dreams are very often of situations of not being able to escape, or able to move and no matter how much I beg for help no-one does assist me. I can remember some dreams even days later remembering some of what was taking place. I thought Somnil would put me in a deeper sleep and yes it did but I still had vivid dreams. Whether all this (which started around three years ago now) is anything to do with Parkie, I don't know.
Hi Tod2 Thanks for you info re Botox. The information will be very useful as I tread the track.
The dreams you describe are common for Parkies but not from the root cause. When healthy people sleep their limbs come into a sort of paralysed state so they don't go thrashing around. From an evolution point it saved the person from predators if they were asleep quietly. For some these mechanics do not work properly and you sound like this is you. From my own experience it wasn't nightmares as you have, but just quietly getting out of bed and roaming the house doing chores. I get confused if I get into half awake mode. one piece of brain says 'go back to bed. The other says 'make the bed'.
You have seen your doctor...Did you get a referral to a sleep specialist? I have had injuries while sleepwalking. I am of the opinion that many Parkies have wild dreams but this is not being talked about much. I first told my doc about mine at least 10 years before I showed any PD symptoms. I think it might be a good idea to ask your doc to check you out for PD to eliminate any possible connections.
Please remember I am not saying you have or will have PD. I am no expert and I have not found any back-up research. Good luck and sweet dreams.
Travel! Set out and head for pastures new[br] Life tastes the richer when you’ve road worn feet.[br]Ibn Battuta[br]
I am so thankful Questa. I will be finding a new doctor soon. My longterm ( over 20 years) doctor retired, so Mr.Tod and I are in limbo doctor-wise. I have had a referral to a new doctor and know of another very old friend of a friend who is very good. The problem is ours - moving on is such a big step. No, honestly I have not been to a sleep specialist. Covid prevents me having to go to the main city of Durban and seeking out such a person. We are so small here that specialist doctors and clinics are almost non-existent. When I find a new Doc I will ask all the questions. Thank you for your answer. I feel better now.
We were obliged in France a number of years ago to designate a specific doctor as our health care provider. Otherwise we ran the risk of not being fully reimbursed for our health expenses. Until then I had just gone to one of the big medical centres which provide excellent care. But in any case, I only found a reason to go every two or three years at most. So I just asked the pharmacy downstairs from my flat if they could recommend a doctor in the neighbourhood, and they gave me two names. So I went to the first one. He was about my age, which did not please me. I would have preferred a younger doctor with more modern ideas and techniques, but since I didn't feel I really needed a doctor, it wasn't all that much of a problem. I stuck with him for more than ten years until he finally retired. I won't quite say "good riddance" but I got to know him quite well over that period and was rather appalled by his opinion regarding our mixed neighbourhood and the fact that (he said) so many of his patients had left because of the "Indian" invasion. (I wonder where the local Indians go for treatment -- I would have quite a bit of confidence in an Indian (origin) doctor in Paris due to the combination of mentality and all of the hurdles they had to jump over to be certified in France, which must be an interesting cocktail.)
Anyway, when he retired, he recommended the other doctor who had been mentioned back at the start. So I have been with her more than a year. She's at least 10 years younger and is more pleasant, with no political bullshit. I suppose that I am very lucky to not (yet) have any real medical problems. I just have to go once every 3 months to renew my standard prescriptions (I never thought I would have "standard prescriptions." Nothing major -- just to keep the blood pressure down a bit -- but I am still horrified by all of the people who leave the pharmacy with a big bag as though they had been to the supermarket.) Nevertheless, I am very grateful to read these other more serious stories because I'm sure it will help me to face reality if (when) I ever reach that stage.
Kerouac, I am in the same situation as you -- without the blood pressure problems. When we moved I had to find a new doctor. This town has a ton of physiotherapists, osteopaths but not many GPs and no specialists. So I finally found a GP who is okay but I find it annoying that he won't give me more than a 3 month prescription for calcium pills. My GP in Toulouse knew me well enough to know that I would come to see him if ever I had a real problem so would just give me a prescription for 6 months at a time and left it for me in his waiting room.
This month I didn't feel like going for the renewal so I just bought the pills over the counter. Given the huge health expenses in the country these days, there is no point in my adding to them by paying 25€ for the doctor's visit for pills that cost 6€.
My GP in Toulouse knew me well enough to know that I would come to see him if ever I had a real problem so would just give me a prescription for 6 months at a time and left it for me in his waiting room.
I am curious. I know that the absorption of calcium is complicated, I read somewhere it had to be "Chelated calcium" - the other problem seemed to be that calcium tablets OTC can give you kidney stones. Please tell me why you are not receiving enough calcium through cheese, milk and other green leafy vegetables? Hope you don't mind me asking.
No, I don't mind. I have osteoporosis in my back so the doctor thought calcium from food is not enough. When the osteoporosis was first detected, my gynecologist prescribed something with hormones in it but after a while (a year or two) I developed terrible headaches. After a zillion tests of eyes, teeth, sinuses, neurological tests, it turned out that it was the pills. The side effect of possible headaches was in teeny-tiny print at the bottom of the page.
Anyway, I stopped immediately but it took a while to work the stuff out of my system. But I still need more calcium + Vitamin D to help absorb it than I would get just from food. Since I have been taking it, the osteoporosis has slowed quite a bit although it won't reverse. I also have to exercise to make the bones work harder, but that's not a problem, at least for now.
Looking at the box, the calcium pills also contain cholecalciférol, so perhaps that's the chelated part?
Post by questa with computer problems on May 9, 2021 5:35:31 GMT
Ask cheery, she would be able to sortt out your calciums. I am on Calcium with Vit D as well. I think it is to protect my bones for when I have a fall. I've not had any falls since I chose to not hurry but take my time and watch out for dangers.
Post by cheerypeabrain on May 9, 2021 15:21:06 GMT
Cholecalciferol, also known as vitamin D₃ and colecalciferol, is a type of vitamin D which is made by the skin when exposed to sunlight; it is also found in some foods and can be taken as a dietary supplement. Cholecalciferol is made in the skin following UVB light exposure.
As I understand it the cholecalciferol aids the adsorption of calcium...but im not a biochemist. Google.
I added vitamin d to my daily pills. Glucophage (helping my pancreas), antidepressor ( and how long have taken these sir, and have you tried solving the root cause sir - well the root cause may not be it, but give me my son back and maybe i stop) and vitamin F (well sir, do you try to get some sun ? - sure, talk to my dermatologist who wants me to avoid sun and cover all of my skin)..
Oh Whaty, You are really having a tough time at the moment, aren't you? I think that many of us are dealing with "The Black Dog" at the moment and I blame the horrors of fear, and helplessness of the comid-19 situation for much of the unhappiness that surrounds us now.
Some wounds heal slowly and no matter how fast or slow, they always leave a scar or tender part inside us. We learn to live with this.
Then along comes some more unhappiness (Usually referred to as "Shit")and the wounds open up again...more pain, with new tears mixing with the old, then gradually the wounds start healing, the tears dry away (This bit can take millennia) and we become "back to our old selves again".
How awful! Who would want to come back to an older self? Better to think about how those wounds that are healing again and we are becoming braver, wiser and stronger selves.
And don't worry about pills...safer than too much wine!
Travel! Set out and head for pastures new[br] Life tastes the richer when you’ve road worn feet.[br]Ibn Battuta[br]
At least treatment has improved over the years, especially when conditions are diagnosed early. I remember when L-Dopa first came on the market and was considered to be a major improvement on past treatments. Obviously, it turned out not to be the magic solution but just imagine how much worse things must have been before then.
Post by cheerypeabrain on May 23, 2021 15:55:51 GMT
It is early days he's known for 6 months but only just decided to tell us, he is a paramedic and noticed a slight tremor in one of his hands. Apparently he's on BP tablets !? atm and will know more when he has a consultation in a couple of months time. Just wondered if Questa has any advice before I go blundering in and put both feet in my mouth.
The most important thing I remember is her wanting family and friends to stop by for visits often. It kept her mind off things and she loved keeping up with the goings on with everyones children, how everyone else was doing and enjoyed the usual gossip over cups of tea/coffee! No acknowlegement was fine with her, your family members should be able to let you know how he/she is with this.
She did not like talking about her diagnosis very often but when she did (usually after a doctor's appointment) I think it helped her to know that I understood what she was talking about as I (and many of us) did a lot of research on her type of Parkinsons (CBP). She could talk about or explain new symptoms or expectations.
After seeing your recent post that he is a Paramedic. Mr. M. also works with a fellow Captain that was diagnosed with Parkinson's about 10 years ago, his started with the hand tremors. He is still working as his type has been a very slow progression (with the assistance of medications) and expects to be able to work for a few more years before enjoying his retirement where he plans to continue his passion in sailing.
Last Edit: May 23, 2021 16:03:21 GMT by mich64: Added additional content.
Thanks Mich, he lives on the other side of the world which is partly why we feel so useless.
Oh I am sorry about that, that is a whole different situation. I now understand why it will be more difficult in how to acknowledge his diagnosis, not being able to casually stop by to add your support.
It is quite possible that my downstairs neighbour has Parkinson's but it is not a question that I can ask him. Sometimes his hands shake enormously and sometimes I don't notice a thing. I think he is about 5-8 years younger than I, so it is the sort of thing that makes me feel lucky, just like the fact that I never have backaches.